Stepping Out Blog

Fragile X Syndrome: How Stepping Out Can Help

Fragile X syndrome, Martin–Bell syndrome, or Escalante’s syndrome – is a genetic syndrome that is the most widespread single-gene cause of autism and inherited mental retardation among boys. It results in a spectrum of intellectual disabilities, ranging from mild to severe. Fragile X Syndrome also results in physical characteristics such as an elongated face, large or protruding ears, and large testes. Additionally, behavioral characteristics such as stereotypical movements, including hand-flapping/biting. Social Anxiety is also a major effect.

Fragile X syndrome is the leading known genetic cause of autism, accounting for about 5% of cases.Of those with fragile X syndrome, the rate of diagnosis of autism spectrum disorder (ASD) has been estimated to be between 15 and 60%.

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What are the Symptoms of Fragile X Syndrome?

  • Delay in crawling, walking, or twisting
  • Hand clapping and/or hand biting
  • Hyperactive and/or impulsive behavior
  • Mental retardation
  • Speech and language delay
  • Tendency to avoid eye contact

Physical signs of Fragile X Syndrome may also include:

  • Flat feet
  • Flexible joints and low muscle tone
  • Enlarged Testes
  • Large body size
  • Large forehead or ears with a prominent jaw
  • Long face
  • Soft skin

How Can Stepping Out Help those with Fragile X Syndrome?

Stepping Out offer Autism & Fragile X Syndrome specific care & support to those diagnosed under the Autistic Spectrum Disorder or with Fragile X Syndrome, via specialist 24-hour semi independent living projects.

We ensure that our staff are trained to the highest standard, and are assisting our Autistic clients throughout every moment of the day. High levels of interaction have proven to help our Autistic clients improve their life skills at a faster rate.

Our 24-hour staffed semi independent living projects are suitable for those whom require well-structured living options with strict boundaries. Our projects offer 24 hour on site staff in order to ensure close and regular supervision.

Our 24 hour provisons are Fragile X Syndrome targeted, are set up to provide a small group living environment in order to provide a homely setting. The small groups allow the service users to receive targeted support and close supervision, eliminating the issues of lack of engagement whilst ensuring the client does not feel overwhelmed and or crowded.

To find out more information on our expansive Autism & Fragile X Syndrome care services, please visit our Autism care page.

 

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Young Offender Accomodation In London

Stepping Out have years of experience providing Young Offender Accomodation In London, Hertfordshire, and surrounding areas.

We are a specialist training, education and social care provider offering accommodation and support to young people and adults with complex needs.

Stepping Out provide six specialist, gender specific provisions to young people whom have a history of offending and gang violence and other complex needs. These young people are accommodated within small homely environments with staffing on-site 24 hours per day.

Below, we have set out a comprehensive plan on managing young offenders in London.

We are nationally recognised as one of the UK’s best semi independent living providers. We have years of experienced backed up with intensely training and managed staff, who are always present at our semi independent living projects across london.

We provide specialist care and support services to children and their families, care leavers and adults with: Challenging Behaviour, Mental Health Issues, Autistic Spectrum Disorder, Borderline Personality Disorders, Learning Disabilities, MAPPA cases, Sexually Harmful & Sexualised Behaviours,  Self-Harm, Suicidal Tendencies, Dual Diagnosis, Alzheimer’s and Early-Onset Dementia.

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Risk Control:

Avoidance:
The best way to avoid incident is to pre-empt, if we see that a service user is at boiling point we will not continue to push the issue. At all-time our staff will use de-escalation techniques with service users whom they fear may be violent or are getting worked up, if this fails then the individual should be given space.

If staff find that two service users are entering into an altercation, staff should not leave them, ideally we should prevent this escalating by withdrawing the aggressor and trying to engage them in a differing task or subject. Ideally a staff member should remain calm and should verbally ask the young people to calm down and discuss their differences like adults. A good method is to ask the young people to sit down and write about their issues, this can then be shared with the other client and can be resolved in a mature manner.

Under our strict knife & safety policy it is extremely unlikely that any sharps will be accessible to young people, though we must also consider drink glasses, plates and general crockery to be a danger, therefore again in order to prevent any serious issues we immediately remove any objects that can be used to harm others.

Distance:
Staying at arm’s length from all service users at all times whilst ensuring we do not enter in to their own personal space is paramount in order to de-escalate or reduce possibilities of incidents occurring. This will greatly reduce the risk of a staff member being struck by a service user who is aggressive.

Note:
Staff should always ensure that they are the closest to an exit when in a room with a service user. Therefore you should not let a service user stand between yourself and the only entry/exit to a room.

Absconding:

This procedure can be discussed with the relevant social worker; we can set a specific curfew that the service user must abide by for example returning to the provision by 11:00 pm latest.

In the event that we cannot maintain contact with the service user and do not know where she is we will do the following:

  • Report service user to the local police (missing person team) inform them of the risks she poses to others and her vulnerability.

  • Contact local authority EDT and provide them with an update plus relevant Reference numbers.

  • Seek to contact service user every half hour throughout the night where possible using telephone, SMS messaging, BBM (blackberry messenger), WhatsApp and or other relevant communication methods.

Vulnerability and Safeguarding

Stepping Out are renowned for our monitoring skill and use common sense plus technology to ensure we are able to keep our clients safe whilst also establishing reasons that trigger negative behaviors. Those young people whom are at risk of sexual exploitation may receive visits from differing males on a regular basis. Our house rules state that visits will need to be vetted before they are able to access the provision, this usually takes 24 hours and will need to be confirmed in writing by the clients social worker, this removes the risk of us allowing residents to socialise with friends whom may be a negative influence and or may be a risk to others.

Our provisions are gender specific therefore we do not allow any male visitors unless family or professionals. Our staff members are tasked with taking note of any unusual behaviors around the immediate grounds of the provision to include driveways and parking spaces in order to ensure our young people particularly females are not entering vehicles where they may be at risk, vehicle registration numbers will be noted and passed on to relevant social workers and police if deemed necessary (important to deter others from seeking to exploit/abuse our clients)

To find out more about Stepping Out’s Young Offender Accomodation In London, contact us.

 

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Autism Care In North London

Stepping Out offer specific targeted Autism care & support to those diagnosed under the Autistic Spectrum Disorder and or who have severe traits of Asperger’s Syndrome.

We ensure that our staff are trained to the highest standard, and are assisting our Autistic clients throughout every moment of the day. High levels of interaction have proven to help our Autistic clients improve their life skills at a faster rate.

Our 24-hour staffed semi independent living projects are suitable for those whom require well-structured living options with strict boundaries. Our projects offer 24 hour on site staff in order to ensure close and regular supervision.

Our Autistic Care in North London provisions are set up to provide a small group living environment in order to provide a homely setting. The small groups allow the service users to receive targeted support and close supervision, eliminating the issues of lack of engagement whilst ensuring the client does not feel overwhelmed and or crowded.

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Stepping Out aim to offer our Autistic service users:

  • Life Skills Development
  • Goal Setting & Regular Meetings to improve service & interaction
  • General Counselling
  • Community Access & Support
  • Education & Training

To find out more information on our expansive Autism care in north london services, please visit our Autism care page.

To conclude, Stepping out aim to provide the highest quality Autism care in north london, via well-structured risk assessments that incorporate strict boundaries and produce positive measurable outcomes, Stepping Out are able to offer vulnerable people the opportunity to improve their quality of life and enable them to achieve greater independence.

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Young Offender Accommodation

Stepping Out is a specialist training, education and social care provider offering accommodation and support to young people and adults with complex needs.

We offer 6 specialist gender specific provisions to young people whom have a history of offending and gang violence and other complex needs. These young people are accommodated within small homely environments with staffing on-site 24 hours per day.

To find out more take a look at our semi-independent living brochure here.

Contact us to make a referral on 0208 342 7217 alternatively please send email queries to info@stepping-out.org.

Click here to visit our main website.

 

Basic support provided

Basic Independent skill training:

  • Daily Hygiene Routines.
  • Maintaining a clean and safe living environment.
  • Food preparation/Healthy eating.
  • Guidance to budget in an independent manner.
  • Reflective support on conduct & behaviour/reduction of offending behaviour.
  • Socialising and community integration.
  • Benefits information.

Base Package: On agreeing to place a client on our base package support plan, you agree and understand that the client will receive only 7 hours per week 1-1 support over two weeks duration for the following tasks:

  • Support with registering at local GP
  • Support with registering at local Dentist
  • Support with registering at local Optician
  • Support with Social/local Integration
  • Raising awareness of transport links
  • Raising awareness of local universal service providers
  • Raising awareness of banks, libraries and areas of interest.

Additional Support can be purchased to compliment the base package.

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Home Care and Domiciliary Care Services

Stepping Out Home Care and Domiciliary Care

Stepping Out is a registered and regulated (CQC) social care provider delivering person centred care services to clients meeting the range of low through to critical high support, high supervision needs.

Stepping Out has built a great reputation for providing specialised support and care packages to clients whom display severe challenging behaviour.

The type of clients we accommodate and support have varying needs to include:

  • Autistic Spectrum Disorders
  • Mental Health Issues
  • Attention Deficit Hyper Activity Disorder or ADHD
  • Borderline Personality Disorder
  • Challenging Behaviour
  • Moderate Learning Disabilities/ Learning difficulties
  • Physical Disabilities
  • Schizophrenia
  • Sexually Harmful Behaviour
  • Sexualised Behaviour
  • Drug & alcohol abuse
  • Self-harm
  • Suicidal tendencies
  • Fabricated & Induced Illness
  • Auditory Hallucinations
  • Command Hallucinations
  • Delusional Ideation
  • Early onset Dementia
  • Dementia
  • Dual Diagnosis

Nature of Service:

Stepping Out is a specialist care and support service providing high level support and supervision. We are able to offer personalised services to clients with early on-set dementia and other issues to include learning difficulties, and mental health. We aim to aid our clients regain lost skills and abilities and promote their independence and dignity.

Service values:

We are passionate about empowering and involving service users: We actively support Service Users to:

  • Communicate their choice in all stages of service development from assessment through to service delivery and beyond.
  • Maximise their potential; building on strengths and meet individual needs towards independence and autonomy, choice and control.
  • Be an active member of the community if desired.
  • Make informed decisions and take positive risks.
  • Achieve better outcomes, ensuring a balance of needs and wants are met.
  • Identify what’s truly important and provide encouragement to actively live by those values.
  • Develop a healthy respect for self and others.
  • Develop self-confidence, self-worth and interpersonal skills.
  • Develop trust in others and share relevant information within the bounds of confidentiality.

Aims & Objectives

The Stepping Out Home Care service’s main aims and objectives are as follows:

  • To provide a broad range of person centred services that meet the diverse needs of our customers to maximise control, choice independence and autonomy.
  • To promote and improve quality of life for individuals.
  • Our service is tailored to meet the individual requirements of the service user in order to maintain maximum quality of life and normality in their own home.
  • Protect the rights and promote the interests of service users.
  • Promote the independence of people who use our services while protecting them as far as possible from danger and harm.
  • We aim to work persistently with the community to ensure universal services are increasingly geared up to meet peoples personalised needs.

Delivery of Service:

Our person centred support teams aim to aid clients maintain independence and ensure they are able to remain within their own homes for as long as possible. Below are some of the main areas our staff members strive to teach, reduce, explore and or support a client achieve.

  • Support with Daily Hygiene Routines
  • Support with food Preparation
  • Support with maintaining a clean and safe living environment
  • Support with Food & Grocery Shopping
  • Support with attending leisure & health activities
  • Support with family contact
  • Religious & cultural needs & preferences
  • Support with reducing substance & alcohol abuse
  • Safety & self-harm reduction + safeguarding
  • Daily reflective support on conduct & behaviour
  • Managing Incidents
  • Support with socialising and community integration
  • Support with attending appointments
  • Support with or to maintain independent skills
  • help increase self-esteem and confidence in order to reach their full potential
  • Discuss Support options available:

Initially and importantly a client should be thoroughly informed of the support options available, this includes the differing types of support Stepping Out offers but also information pertaining to local opportunities, activities and services, this may include healthcare services and or local shopping malls, parkland, job opportunities or local day centres.

Each client should be treated and supported in a personalised manner. Active listening to be employed at all times by our staff members to ensure we are fully able to record the opinion, wishes and preferences the client may have.

Once we have established a clear idea of the type of support and or care the client needs and wants we must then begin to devise a bespoke support plan.

Communicate and alleviate fears:

Communication is important; some clients may feel that they do not require care or support. It is paramount that the relevant staff member actively listens to the client, takes note of any fears and or anxieties and seeks to guide, discuss and reassure.

The client should be given time to fully discuss their care plan and make suggestions, amendment and or improvements throughout their care. Effectively Communicate, goals, tasks and plans:

Planning is an important step in order to ensure a client receives the correct levels of support whilst ensuring the support is administered in a personalised manner. Planning begins before and throughout a client’s care plan. Goals and tasks may be set by the clients with the aid of their support worker. For example it may be decided that a client will devise a weekly, monthly and yearly goal setting plan. The plans may be as basic as deciding which days they’d prefer to carry out their food and grocery shopping, in addition a goal may be set to visit a particular destination or visit a city abroad. Setting such plans alongside the clients care plan allows the client to feel fully in control of their care and helps reduce anxieties, the plans are also useful for clients with dementia whom require a document to aid them remember their plans and goals.

Risk Assessment:

A thorough risk assessment should be carried out and agreed upon by all relevant parties, the client, family members, service manager and relevant professionals before confirming a particular task or activity. A separate risk assessment should also be carried out pertaining to the client’s home and the support and care provided around the home.

Are you interested in discussing the options Stepping Out makes available pertaining to placing a client within our supported living or semi-independent living provisions?

Maybe you’d like to discuss how we could provide outreach and or home care services to your clients, friends or family members?

Contact us today on 0208 342 7217 or send an email to info@stepping-out.org

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